There are over 200 different types of Dwarfisms. PD is the rarest form of dwarfism. There are about 5 categories of PD. The kind our sons and daughter have is the most common type of PD. There are about 50 known cases in the USA and Canada with about 100 cases world wide. They will have to have MRIs yearly for the rest of their lives to check for aneurysms and Moya Moya. The average height for someone who has MOPD II is 3 ft. Due to PD being so rare; doctors are constantly learning new medical information. We are so blessed that our children with PD are so healthy and we pray for their continued health.
Raising money for the Potentials Foundation is the least we can do. This organization was created and operated by parents of children affected by PD. They are a huge support to families all over the world who are affected by PD. Their mission is to enrich the lives of individuals with diagnosis of any type of primordial dwarfism by facilitating and organizing opportunities for families to meet, providing information relating to known health concerns and specialty care, and furthering research efforts. If you would like to learn more about Potentials Foundation, feel free to check out their website http://www.potentialsfoundation.org
Raising money for the Potentials Foundation is the least we can do. This organization was created and operated by parents of children affected by PD. They are a huge support to families all over the world who are affected by PD. Their mission is to enrich the lives of individuals with diagnosis of any type of primordial dwarfism by facilitating and organizing opportunities for families to meet, providing information relating to known health concerns and specialty care, and furthering research efforts. If you would like to learn more about Potentials Foundation, feel free to check out their website http://www.potentialsfoundation.org